I recently got a new job, and if the full time training schedule taught me anything, its that I'm not capable of working full time. By the end of the eight hours I was exhausted and useless. Falling asleep sitting upright is not exactly conducive to a good work performance, as I'm sure anyone would know. Needless to say I was also frustrated that during training we were allotted an hour for lunch, but during my normal schedule, I discovered we only receive a half hour. With my hypoglycemia this is NOT enough time to eat enough food to keep me going through the day... it just isn't. I've been repeatedly throwing away over half my food because I've run out of time, and that effects my energy levels even MORE. So now not only is it just way too much work, but my careful diet has gone out the window and its destroying my body and my immune system. I got sick for the first time since overhauling my lifestyle. Almost an entire year without any sickness, and as soon as I start working bam, there it all goes out the fucking window.
Well I talked to my supervisor and he agrees that its better to reduce my hours than try to work unmanageable hours and fail at my job. So he sent me over to the woman who does the scheduling and I was told that the change would be done, all I needed was information from my doctor's. So I went to do so and was told I had to make an appointment. They wanted me to wait two weeks. I don't HAVE two weeks. So they squeezed me in today. I was so relieved. So I went in and she wrote down everything about my diet and my need for an hour lunch, but refused to advocate for a reduction in the number of my actual work hours because "people with fibromyalgia need to be active". Well for one thing, my fibro is complicated by my hyper-mobility, so being active isn't as easy as it seems. Not to mention the chronic fatigue, and the fact that my job is a SIT DOWN JOB. Meaning I'm not actually being physically active in a way that would keep my blood flowing and my mind alert. I'm sitting down, and I'm falling asleep, and thats bad. She also had the nerve to suggest that if I needed a psychological accommodation that a psychologist would need to be seen for that. Excuse me? What psychological condition? I was evaluated when they did my brain scans, there is nothing psychologically wrong with me. I'm autistic, not depressed or anti-social. It made my blood boil that instead of admitting that I have a real physical issue, that I'm just mental. Being invalidated like that is just absolutely infuriating. Not to mention that she acted like because I'm not on disability, that I'm not disabled. Of all people you think a doctor would understand how long obtaining disability takes... its a long fucking process.
So I took off to the rheumatologist's office and explained to the receptionist what information I needed and for what. They had me write a detailed note and leave the paperwork there for him to review. I'm crossing my fingers that he fills it out for me as I need it, because if my work schedule doesn't change soon, I'm going to be in trouble...
